Tami Stackelhouse is the founder and primary instructor of the International Fibromyalgia Coaching Institute.
Diagnosed with fibromyalgia in 2007, Tami’s illness became so severe that she filed for Social Security Disability in 2008. By the time her disability case made its way to a judge in early 2010, her health had improved so much that she no longer qualified. Today, Tami is thriving, with enough energy to do the things she wants to do and with essentially no body pain. You can read more about Tami’s journey with fibromyalgia on her personal blog.
As a Fibromyalgia Coach, Tami’s compassion, gentle support, and fun coaching style have helped fibromyalgia patients all over the world take back control of their lives. Tami has been a Certified Health Coach since 2010, receiving certifications from the Health Institute and Villanova University’s College of Nursing. She is a graduate of the Leaders Against Pain Scholarship Training sponsored by the National Fibromyalgia & Chronic Pain Association, and a member of the Leaders Against Pain Action Network.
Tami is the author of the bestselling books The Fibromyalgia Coach: Feel Better, Change Lives, and Find Your Best Job Ever (Difference Press, 2017) and Take Back Your Life: Find Hope and Freedom from Fibromyalgia Symptoms and Pain (Difference Press, 2015). Her blog was named one of the 15 Best Fibromyalgia Blogs of 2015 by Healthline. In 2016, Tami was nominated for the Health Activist Hero award in the 5th annual WEGO Health Activist Awards. She has served as a panelist, instructor, presenter, and writer for organizations such as the National Fibromyalgia & Chronic Pain Association (NFMCPA), Oregon Health & Sciences University, The Frida Center for Fibromyalgia, Oregon Fibromyalgia Information Foundation, and Molly’s Fund Fighting Lupus. She co-founded the Fibromyalgia-ME/CFS Support Center, Inc., a nonprofit support community, and served as their Vice President from 2011 to 2015.
As a patient advocate, Tami began working closely with the NFMCPA and Oregon doctors in 2013 to petition policymakers to move fibromyalgia onto the Prioritized List of conditions covered by Medicaid reimbursement. As of 2017, that battle is still on-going. Oregon remains the only state in the US that does not cover fibromyalgia treatment on their state health plan.
Tami lives in the suburbs of Portland, Oregon, with her husband, Scott, and their three cats: Sam, Jesse, and Sniglets. On sunny days, you’ll find her on the back of Scott’s Harley. When it’s raining, she will be by the fire, reading a good book, and rubbing Sam’s big Belly of Happiness and Joy.
“As a physician, I need people who are patients themselves to act as patient advocates, to guide and teach other patients self-care, what to ask their doctors, and offer emotional support. That’s where I think [Fibromyalgia Coaches and Advisors] have an important role.” — Ginevra Liptan, MD
Ginevra Liptan, MD
Ginevra Liptan, MD, is a graduate of Tufts University School of Medicine and is board certified in internal medicine. Her clinic, The Frida Center for Fibromyalgia, is located in Lake Oswego, Oregon. She has been an associate professor at Oregon Health and Science University and her articles about fibromyalgia have been published in peer-reviewed medical journals. Dr. Liptan has extensive clinical, personal and research experience with this illness and is the author of The FibroManual: A Complete Fibromyalgia Treatment Guide for You—and Your Doctor (coming in May 2016) and Figuring Out Fibromyalgia: Current Science and the Most Effective Treatments (2011).
Andrea W. Hanson
Andrea Hanson is an author and stress management super star. She received her Master of Science in Human Development from the University of Texas at Dallas and wrote the best-selling book, Live Your Life, Not Your Diagnosis: How to Manage Stress and Live Well with Multiple Sclerosis. She is a Certified Life Coach with Martha Beck, a Certified Weight Coach and Master Certified Life Coach with The Life Coach School.
After her diagnosis of multiple sclerosis in 2000, Andrea realized that the key to living well with MS was getting her stress under control. Using those same skills, Andrea now teaches other women how to manage their stress and minimize their symptoms so that they can live their lives, not their diagnosis.
The Frida Center for Fibromyalgia
The Frida Center for Fibromyalgia is an integrative medical clinic founded by Dr. Ginevra Liptan. The center is much more than a medical clinic and aims to be a resource for the treatment, research, and education of fibromyalgia. Be sure to check out the Frida Center Retreat, a three-and-a-half day immersive program designed around Dr. Liptan’s Four R’s Treatment Approach.
Regarding Fibromyalgia Coaches and Advisors, Dr. Liptan says:
“Successful management of any chronic illness requires a large component of education on self-management skills. In an ideal world, every fibromyalgia patient’s health care team would include a health coach/educator along with a medical professional.” — Fibromyalgia Health Coaches and Educators Could Fill Vital Gap in Care, DrLiptan.com
Give Pain A Voice
Give Pain a Voice nonprofit is a grass roots movement based in Toronto, Canada. Their mission is to create a support network for pain patients to reduce isolation, lobby to governmental bodies for pain care reform, and produce media materials promoting better public awareness and understanding of chronic pain. Give Pain A Voice sees their role as educating society that pain care is a basic human right.
National Fibromyalgia & Chronic Pain Association
The National Fibromyalgia & Chronic Pain Association unites patients, policy makers, and healthcare, medical and scientific communities to transform lives through visionary support, advocacy, research and education of fibromyalgia and chronic pain illnesses. Jan Favero Chambers, President of the NFMCPA, was the keynote speaker at our January 2016 graduation.